When Robert and Denise Spear of East Meadow started raising money and awareness for Tuberous Sclerosis Complex (TSC), a serious medical condition that affects their 9-year-old daughter, Alexandra (Ally), they were told it would not be easy.
The Spears took on that fundraising challenge and have raised awareness and impressive funding in the fight against TSC. Since 2009, the Spear family has helped raise more than $110,000 for the Tuberous Sclerosis Alliance, an organization focused on finding a cure for TSC.
Hempstead Town Supervisor Kate Murray and Councilman Gary Hudes joined the Spears – Robert, Denise, Ally and her four-year-old brother, Brendan – on Tuesday, July 19th in front of Jackie Reilly’s Restaurant in Bethpage to help promote the family’s 3rd Annual Tuberous Sclerosis Fundraiser, to be held there on Thursday, August 11th.
“We applaud the hard work and dedication of the Spears, who have worked tirelessly to find a cure for the disease that affects their wonderful daughter, Ally,” Murray said.
“The Spears are truly an inspirational family and we are more than happy to pitch in and help promote their efforts.”
Ally Spear was born with TSC, a genetic disorder that causes tumors to form in different parts of the body, including the brain, eyes, heart, kidney, skin and lungs. The condition causes a host of medical issues, including seizures, respiratory ailments and autism.
The 3rd Annual Tuberous Sclerosis Fundraiser will be held on Thursday, August 11th at 6 p.m. at Jackie Reilly’s Restaurant. Admission to the fundraiser, paid at the door, is $10 (no advance tickets required). There will be live music, food, 50/50 raffles and Penny Auctions. Jackie Reilly’s is located at 3964 Hempstead Turnpike in Bethpage.
The Spears are also preparing for the 2nd Annual “Step Forward To Cure TSC” Walkathon to be held at Wantagh Park on Saturday, September 24th at 11 a.m. The Spears invited Councilman Hudes to serve as their celebrity guest of honor at the walkathon. Walkathon participants can register on the day of the event or online at
“This disease hits close to home in East Meadow with the Spear family,” Hudes said. “It affects so many other families that have to cope with a disease like this, creating profound hardship. Therefore, raising money for more research and to find a cure for this disease is imperative.”
For more information on the family’s fundraising efforts, call Robert Spear at (516) 250-0803 or send an email to email@example.com. “We are excited to have Gary and Kate’s support because it brings us to a new level,” said Robert Spear. “Hopefully our efforts can help us get closer to finding a cure for TSC.”